Talking Healthtech: Dr Valerio Vittone on Long COVID
Since investigating my DNA with Dr Valerio Vittone, I believe more that my health issue is not about chronic pain but rather about inflammation. I've reaped magnificent rewards since implementing...
View ArticleMy Lived Experience at CODA Conference
The Primary Care workshop at this year's CODA Conference was my favorite lived experience contribution to date! The workshop approach was more effective than my other 'standup gigs'. Something has...
View ArticleIntroducing Nerita Lewis, Founder of Jaspen, a new social platform
In 2011 when I built pudendalnerve.com.au, the internet was starved of helpful communities and resources. It was the very reason my advocacy began. I didn't want anyone to be as lost as I was on my...
View ArticleOwn Your Health Data
Self-management is hard, chronic illness is overwhelming. Chronic illness robs you of your independence and control, leaving you feeling defeated and mentally and physically drained. Add to the endless...
View ArticlePainAustralia Survey Report: Impact of opioid regulatory reforms on people...
When will patients be understood and listened to?! It’s obviously necessary to have a peak body addressing the needs of the pain community. Still, the frustration of not being taken seriously only...
View ArticleSan Diego Pain Summit
Pain Management Conference The 9th Annual International multidisciplinary conference helping clinicians translate pain research into patient centered care. Rajam Roose is the CEO/Founder and sole...
View ArticleCODA 2022: My Lived Experience and I Will Be There
I'm thrilled to be invited to another educational event IN REAL LIFE I might add. I really enjoy collaborating with Dr Paul Grinzi as a lot of his educational workshops have a great focus on...
View ArticleMy Health Story now LIVE
My Health Story is now live and has totally replaced PainTrain My Health Summary. My Health Story goes beyond helping people communicate their stories of living with chronic pain. It now presents a way...
View ArticleSoula Mantalvanos, Published Author of the Journal of Medical Internet Research
I'm an author of What Injured Workers With Complex Claims Look For in Online Communities: Netnographic Analysis, now published in one of the world's best medical journals.
View ArticleHello Happy Ears, Hello Better Night’s Sleep
Who would have thought it? But these wobbly, jelly-like babies (officially known as Happy Ears) are helping me get a great night's sleep. At first, I thought the sound caused by putting these in the...
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