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Talking Healthtech: Dr Valerio Vittone on Long COVID

Since investigating my DNA with Dr Valerio Vittone, I believe more that my health issue is not about chronic pain but rather about inflammation. I've reaped magnificent rewards since implementing...

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My Lived Experience at CODA Conference

The Primary Care workshop at this year's CODA Conference was my favorite lived experience contribution to date! The workshop approach was more effective than my other 'standup gigs'. Something has...

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Introducing Nerita Lewis, Founder of Jaspen, a new social platform

In 2011 when I built pudendalnerve.com.au, the internet was starved of helpful communities and resources. It was the very reason my advocacy began. I didn't want anyone to be as lost as I was on my...

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Own Your Health Data

Self-management is hard, chronic illness is overwhelming. Chronic illness robs you of your independence and control, leaving you feeling defeated and mentally and physically drained. Add to the endless...

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PainAustralia Survey Report: Impact of opioid regulatory reforms on people...

When will patients be understood and listened to?! It’s obviously necessary to have a peak body addressing the needs of the pain community. Still, the frustration of not being taken seriously only...

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San Diego Pain Summit

Pain Management Conference The 9th Annual International multidisciplinary conference helping clinicians translate pain research into patient centered care. Rajam Roose is the CEO/Founder and sole...

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CODA 2022: My Lived Experience and I Will Be There

I'm thrilled to be invited to another educational event IN REAL LIFE I might add.  I really enjoy collaborating with Dr Paul Grinzi as a lot of his educational workshops have a great focus on...

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My Health Story now LIVE

My Health Story is now live and has totally replaced PainTrain My Health Summary. My Health Story goes beyond helping people communicate their stories of living with chronic pain. It now presents a way...

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Soula Mantalvanos, Published Author of the Journal of Medical Internet Research

I'm an author of What Injured Workers With Complex Claims Look For in Online Communities: Netnographic Analysis, now published in one of the world's best medical journals.  

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Hello Happy Ears, Hello Better Night’s Sleep

Who would have thought it? But these wobbly, jelly-like babies (officially known as Happy Ears) are helping me get a great night's sleep. At first, I thought the sound caused by putting these in the...

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